When our family first started on this journey, we thought we knew what caregiving would be like. We knew it wouldn’t be easy, but we had no idea how much harder it would get as Mom’s condition worsened. It’s a role that constantly changes, challenging you in ways you never expected. But through it all, one thing became clear — the value of being there for your loved one in their most difficult moments is immeasurable.
We’re not going to sugarcoat it — caregiving is tough. But you don’t have to do it alone. There are national, local, and virtual support networks that can offer guidance, emotional support, and practical resources. This hub is here to help you access those resources, so you can feel empowered in your role. After all, some of the most valuable ways to show your loved one you’re their ride or die is through your unwavering support and knowing where to turn for help when you need it.
Understanding Your Role
Caregiving for pancreatic cancer patients often involves:
• Managing daily care routines
• Communicating with healthcare providers
• Providing emotional support
• Handling financial and legal matters
Support Resources for Caregivers
Emotional Support and Counselling
Pancreatic Cancer Canada - Peer Support and Short-Term Counseling
Connect with trained counselors through Pancreatic Cancer Canada’s partnership with Wellspring. They offer peer support, monthly support groups, and short-term counseling tailored to those affected by pancreatic cancer. Learn more or call 1-877-499-9904 for assistance.
Pancreatic Cancer Action Network (PanCAN) - Survivor and Caregiver Network
Provides personalized resources and connects caregivers with others who can offer support and hope. Contact PanCAN Patient Services at (877) 272-6226 or visit their resources page.
CancerCare - Online Support Group
Join a free, 15-week online support group led by an oncology social worker, designed for caregivers of pancreatic cancer patients. This group helps reduce feelings of loneliness and provides practical information about treatment and coping strategies. Register here.
Online Forums and Communities
CancerConnection.ca by the Canadian Cancer Society
An online community where caregivers can connect with others who understand their experiences. Members share insights on coping with treatment, managing stress, and self-care tips. Join the community.
Smart Patients Pancreatic Cancer Community
An online forum where caregivers can share advice, ask questions, and connect with others facing similar challenges. Visit Smart Patients.
Educational Materials
• Guides on understanding pancreatic cancer, treatment options, and managing side effects.
• Webinars and workshops designed for caregiver education.
Practical Caregiving Tips
Manage daily tasks like medication and meals with ease, and communicate effectively with healthcare providers.
Daily Care Routines
Preparing Your Home for Home Care
Adjusting to Home Care with Home Care Adjustments to Prepare Your Home for the Transition
Prepare For Home CareTransitioning to home care can feel like a lot, and it’s okay to be scared or unsure. It’s a huge change, and it can bring up a lot of questions. But you’re not alone in this. Many people have been where you are now, and they have tips to help make it easier. In this guide, we’ll share stories and advice from others who’ve gone through the same thing, along with practical tips for getting used to having help around, like a home care worker, so you can feel more at ease.
Financial Guidance
Explore financial assistance programs, government benefits, and non-profit grants to support caregivers.
Legal Considerations
Understand patient rights and access legal resources designed to support caregivers. Find practical guidance on managing medical documentation and legal paperwork.
Self-Care for Caregivers
Tips for stress management, including mindfulness practices and relaxation techniques.
Caring for others is both meaningful and tough. As a caregiver, looking after your own well-being is essential—not just for your own health, but also for the care you provide. Self-care isn’t an indulgence; it’s a necessity.
Why Your Health Matters
When you’re giving so much of yourself to others, it’s easy to forget your own needs. But neglecting yourself can have a serious impact. By practicing self-care, you can:
• Reduce stress and anxiety
• Build emotional resilience and well-being
• Enhance the care you provide
• Improve your physical health
• Strengthen your relationship with those you care for
Community Connections
Discover a directory of local and national support networks designed for caregivers. Explore opportunities to connect with others through events and support groups.
Additional Resources
Recommended Books and Websites
We’ve curated a list of recommended books and websites to provide valuable support and guidance on your journey.
• Links to further reading materials, videos, and external websites that provide in-depth information on caregiving.