Team Heather Returns for Year Two of Kicking PancreAS
Welcome to our fundraising page for this year's Kicking PancreAS™ 5K, a cause that's incredibly close to our hearts.
Join us in the fight against Pancreatic Cancer!
Welcome to our fundraising page for this year's Kicking PancreAS™ 5K, a cause that's incredibly close to our hearts. We're rallying in support of Craig's Cause, a remarkable Canadian charity dedicated to providing essential support to individuals and their families touched by Pancreatic Cancer - and for our mother, Heather, who battled Pancreatic Cancer courageously.
Craig’s Cause hosts programs like Peers with Pancreatic Cancer, a weekly support group via Zoom that encourages patients to advocate for themselves and to share experiences with peers facing the same challenge, and a wealth of other investments in patient support, healthcare education and research collaborations.
About Pancreatic Cancer in Canada
Pancreatic Cancer is one of the world’s most lethal cancers, but also incredibly underfunded. In Canada, the five-year survival rate lags behind the United States, with only 10% of patients surviving five years after diagnosis.1 That’s where advocacy organizations like Craig’s Cause can make a difference.
Being a cancer patient already comes with its own set of physical and mental challenges, from treatment side-effects to medicine adherence. Patients shouldn’t have to spend their days researching options feeling disregarded by the healthcare system.
Germline (Genetic) testing and Comprehensive Genomic Sequencing (Somatic) testing of tumors have emerged as ways of informing personalized treatment options and are one of the many advances that may improve outcomes for Canadians. They also help to personalize clinical trial matches based on your tumor mutations.
We were advised the tests would be expensive and unlikely to yield actionable results. Turns out, a high TMB would have made Keytruda a treatment option earlier on.
We went with a Canadian company that was doing testing for Pancreatic Cancer patients for free; they later would go bankrupt and there were discrepancies between testing in Canada and reputable testing in the United States.
Team Heather
We learned a lot of lessons along the way and how to advocate for our Mother, and our family. But advocating for treatment or testing options that you aren’t aware exist or aren’t mentioned by your Oncologist can be challenging. Indeed, we learned some lessons too late to act on. But it doesn’t have to be that way.
Team Heather
About Craig’s Cause
Craig’s Cause was founded in 2006 by the family of Craig Schurman Condon, after a short battle with Pancreatic Cancer lasting only eight weeks. The family would one year later, channel their loss into what would become a nationally recognized charity that supports families just like ours.
To date, they have raised over two million dollars and continue to honour their mission to donate 100% of all charitable donations directly to patient support, research, and advocacy efforts. Along with the QEII Foundation and the Nova Scotia division of the Canadian Cancer Society they hold the record for the single largest financial contribution to Pancreatic Cancer in Canada with a 1.4 million dollar contribution in 2014.
Having an organization dedicated to ensuring that Canadians demand more from their healthcare providers than just a label and a one-size-fits-all approach will ensure everyone has access to updated treatment options and guidelines; and advocate for the best healthcare outcomes for their disease. Just this year, Craigs Cause Introduced the world's first Pancreatic Enzyme Replacement Therapy (PERT) calculator to help patients understand how Pancreatic Enzymes can be dosed more effectively after several studies highlighted marked improvements in overall survival.2
Last year, Team Heather walked in support of Heather as she watched on FaceTime from the hospital, and told us how incredibly moved she was by the show of support from family and friends.
This year, we walk to honour Heather’s memory and our resolve to make an impact is only stronger. We’ve already surpassed last year's fundraising goal and with your help, we believe it's possible.
Every step we walk, every dollar we raise, brings us closer to a future where Pancreatic Cancer can be defeated. Your support means the world to us and to all the families navigating this journey and is a true tribute to the person who she was.
About Heather
Heather graduated from the General Hospital School of Nursing in 1981; she dedicated 20 years to Neurosurgery and another 15 years to Obstetrics. As my nurse through and through, she always prioritized the care and well-being of others.
Summers were well-spent many times at Terra Nova National Park with family and friends. As my sister noted, there was no puzzle she couldn’t take on, and she could always be found working on her latest home improvement idea or tending her garden.
A Lifetime of Memories (©2024 Heather Cutler Foundation.)
At her very core, she was a woman driven by the value of family- her kids, husband, parents or anyone else who had a seat at family gatherings over the holidays. Even in the final few weeks, she was insistent on making any decisions as a family.
As a medical professional, she knew something was wrong when she noticed a distinct back pain for several months. Before visiting her family doctor, she told her husband, Barry, that whatever the news was, it would be something serious.
That day, she was told there were concerning spots on her Pancreas and liver and that a biopsy would follow, which would confirm Stage IV Pancreatic Cancer.
Before that day, most of us hadn’t even heard of Pancreatic Cancer before, and the prognosis would shake us to the core. Heather made it clear, however, that she would fight this cancer as long as she could for her family and that she wasn’t ready to go anywhere just yet.
As bi-weekly chemo treatments and blood tests became the new routine for Heather, her daughter, Bethany and son, Christopher, began researching Pancreatic Cancer and possible treatment options, support organizations and clinical trials. Advocacy groups like Craig’s Cause stressed the importance of access to somatic and genetic testing, the vital role of Pancreatic Enzymes, second opinions and exploration of clinical trials. Every Monday after Jeopardy, Heather and family would hop on Zoom for Peers with Pancreatic Cancer to catch up with other patients (soon to be peers) going through the same thing and to share treatment experiences and updates.
Sadly, the availability of clinical trials in Canada that target tumour biomarkers lag far behind offerings in the United States. Princess Margaret gave us a second opinion that current Canada-based trials would not benefit us. Shortly after, we focused on treatment options offered in the United States.
Heather travelled to Maryland, Baltimore in 2023 to seek a second opinion and see if there was anything more to offer beyond the two standard-of-care treatments approved in Canada. The first appointment was quite optimistic- there was a third-line treatment recently approved, and as a fall-back there was a clinical trial opening up in the summer which targeted her KRAS G12D mutation.
Unfortunately, as many families who have been touched by Cancer are familiar with- the disease can be unpredictable.
Things were so good for so long. There was always hope. Even at the last chemo appointment where we were told that stopping chemo would be the right choice as the second-line chemo was no longer effective.
Despite requesting the approval of a third chemo in Canada almost two months prior, when we raised it again at her last appointment we were told that her oncologist would need time to look into it.
By that time, ascites had already developed in the abdomen and it would be a steady decline over the next couple weeks. But there was still hope. Until the last moments we held onto hope.
Given that so many with Pancreatic Cancer don’t get three months, and that even less get a pass away peacefully- we were so grateful that she got her wish from the hospital to come back home. The amazing staff at 5NB, where she had worked all those years before, took care of their own and we welcomed her back from hospital in May.
"By participating in Kicking PancreAS™️ 5K, you can make a difference in the lives of every Canadian diagnosed with Pancreatic Cancer, along with their loved ones. Your donations directly support our four pillars: Awareness, Education, Support, and Research. Through fundraising, you actively contribute to the programs and resources needed to enhance the quality of life for patients today and in the future. Currently, only 1 in 10 Canadians will survive 5 years from diagnosis. Join the fight today and help us change the outcome of this devastating disease" – Craig's Cause
She would have been so proud of being able to contribute in any way possible to improving the outcomes for future patients living with Pancreatic Cancer.
So let's lace up, rally our spirits, and set out to make this year's event a milestone in the fight against Pancreatic Cancer. Your generosity fuels our hope and drives forward the invaluable work of Craig's Cause. Let's turn the tide against Pancreatic Cancer, one step at a time.
Event Details
Date: Sat., June 1, 2024
Time: 6:30 p.m. NDT
Location: Quidi Vidi, St. John's, Newfoundland
Join us at Quidi Vidi for the Kicking Pancreas Walk to support Craig’s Cause. This fundraising event will help advance pancreatic cancer research and bring our community together for a great cause.
How to Support Team Heather
Walk with Team Heather
Support Team Heather's mission to fight pancreatic cancer by making a donation. Your contribution will go directly to Craig’s Cause to fund essential research and provide support for those affected by pancreatic cancer. Choose “Join Team” to walk together as part of Team Heather on June 1st. In addition to supporting a great cause, every walker will receive a runners bib, a finishing medal and swag.
Donate on Behalf of Team Heather
Support our mission by making a donation to Craig’s Cause, or make one on behalf of a specific team member. Your contribution will help fund crucial research and support for those affected by pancreatic cancer.
Topics Discussed
Somatic Testing
A type of test performed on your tumor biopsy sample, examining the genetic mutations in the tumor itself, rather than your inherited genes. It looks at the specific mutations that may be responsible for driving cancer growth.
Genetic Testing
Genetic, or germline testing is a blood test that determines if there is a genetic, inherited reason for someone with Pancreatic cancer and their families. There are some drugs developed for certain genetic markers.
References 📚
1. Canadian Cancer Statistics Advisory Committee. Canadian Cancer Statistics 2021. Canadian Cancer Society; 2021.
2. V. P., and A. Najjar. “Effects of Pancreatic Enzyme Replacement Therapy (PERT) on Overall Survival (OS) in Patients (Pts) with Advanced Pancreatic Ductal Adenocarcinoma (APDAC) and Evidence of Pancreatic Enzyme Insufficiency (PEI): A Single Institution, Retrospective, Cohort Study.” Journal of Clinical Oncology, vol. 41, no. 16, 2023, https://doi.org/10.1200/JCO.2023.41.16_suppl.e16254.
